In the early morning dark, all sleeping in one room at the Ronald McDonald house, we woke Phoebe up to prepare for her procedure. Brandon had already run out to get starbucks for he and I, and then we gave her the sweater that I had knit per her request (and her pick of yarn). We also gave her the unicorn as a gift, for her bravery, discipline, and perseverance in this three month intensive part of her journey. So, wrapped up in that knitted love and comfort, and snuggling “Rosie,” she went back into her procedure. I was with her until she was just going to sleep, and it makes me cry every time to walk away from her and leave her there, but it was a small measure of comfort to see her snuggled up in that bright yarn and snuggling her new friend.
We have heard back about the pathology report from Phoebe’s recent endoscopy. Her intestines are showing full healing, healthy whole villi, and little to no active celiac damage. You guys!!! We are FLOORED. We are in shock, disbelief. It feels like a miracle. You guys have prayed us through, you have prayed for our girl and God has answered!
Now, we aren’t totally through the woods yet. Her blood work showed still elevated levels of inflammation, which is a bit perplexing. I’ve heard different opinions about what this can mean, and I’m still waiting on a call back from the Winston Salem doctor about having another pathologist look over her biopsy results. So I’ve been sitting on the results for a few days waiting, but I know so many of you are waiting and asking and wanting to know the results and I didn’t want to keep you waiting. Especially on, what we feel, is still SUCH good news!
Is it all over? Is the worst behind us? I don’t know. We still have a lot of work before us in helping Phoebe grow and in encouraging her to eat more/healthfully. We plan to do some work with a naturopath going forward. She will have quarterly blood checks and regular weight/height checks so we can monitor progress. We believe God has been speaking to us about this season of intense difficulty coming to an end, but my heart is so tender and fearful to hope. It’s easier to brace for the next wave of the trial sometimes than it is to rest in HOPE and faith. So you can pray for that for Brandon and I. Of course, we know that we aren’t fully out of the woods yet, it is too soon, but we do hope that from here we will see our girl flourish.
To those of you who have prayed for this miracle: how can we ever thank you enough? You have prayed life and healing over our girl and we believe we are seeing these shocking results because of your prayers! God promises that our prayers are effective and powerful (James 5:16) and that they can make an actual difference in things like this. God cares about healing and bringing wholeness and restoration, as we saw Jesus constantly healing all the sick ones that He came in contact with, and as we are told that this was part of His earthly mission (Luke 4:18). It is still part of His mission: taking back the lost ground, healing the broken parts, mending the ruined world, glorifying Himself and making His power and might known in our midst.
To those of you who have donated funds so that we can afford these treatments for Phoebe and so that we can continue her medical testing, how can we ever thank you enough? You have been a huge part of this process and this result. You have provided relief and help in a very tangible way to our family. You have, more importantly, just overwhelmed our hearts with encouragement, with the sense that you are behind us, for us, and with us. We know one day we will be able to bless others financially as you have blessed us, and we eagerly look forward to returning the blessing. We will do so in the small ways that we can now.
We will keep everyone posted as we know more about Phoebe and as we continue on this journey. For now Phoebe’s diet will change slowly and with a different approach than anything we have tried thus far. She is already so pleased just to have her beloved cereal, and slowly we will phase in other things, but will also phase out things we don’t believe she tolerates well. I will still need to make most of her food from scratch and from carefully chosen sources, so there is still a bit of work ahead for me in trail + error.
As my mother-in-law gently but firmly encouraged me last night, we will rest in this healing. That this is the beginning, a new beginning, and we are thankful to our Faithful God and to you!